A seven-year campaign to make Motor Neurone Disease notifiable in NSW has become a reality giving researchers an unprecedented opportunity to investigate this devastating disease.

From 1 September, medical practitioners will be required to notify NSW Health of MND cases following the publication of the Public Health Amendment (Motor Neurone Disease) Order 2026.

Ms Dalton has campaigned alongside leading MND specialist Professor Dominic Rowe AM for a notification system, driven in part by concerns about unusually high rates of MND in communities across the Riverina.

Under the new system, NSW Health will collect information including a person’s age, address, occupation, date of onset and other demographic and clinical information.